In a recent newsletter, I let my subscribers in on a little nugget of truth that I’ve been keeping to myself since I started blogging. For anyone who missed it and is interested in knowing what all the fuss is about here you are.
Back in 2009, I came down with quite a severe infection; I don’t really remember too much other than seeing my mum standing over me when the fever would break momentarily. Scary as this is looking back, I’m starting to understand how my mum was feeling. Not so long ago she admitted that she thought that I wasn’t going to be around too much longer.
Luckily enough I was and still am around, and I recovered. Well, I’ve sort of recovered.
I started to suffer from seizures after this little episode. I would head to work, but by the time I would get there, I would be completely exhausted. At the point during my shift when I was at my worst, I would pass out and come over all fifty. Any time that I would suffer a seizure, my employer or colleagues would have to call the paramedics. After about the 5th time the ambulance team were called to my work my boss told me to take some time off and concentrate on getting better. I could come back o work when I was fixed.
After a year I was finally diagnosed. The specialists said that I would likely suffer from my syndrome for a year or two years max. After two years I was told that some folks have my condition for five years. The five-year mark came and went, and I was back seeing more specialists, and then just last year my diagnosis changed.
It turns out that I have a connective tissue disorder which affects my mobility and the effort it takes me to do the things that I used to do without any problems now exhaust me.
Effectively I have been house bound since 2009. Luckily, I have a fantastic GP. My medication is at a beautiful balance now where I’m able to achieve a little more in a day. After receiving the diagnosis of my connective tissue disorder, I learnt that this is what I’m going to be like forever. My joints ache all of the time, I dislocate everything way too easily and doing anything is a chore. If I don’t get a good nights sleep, then my day is a complete write-off.
I am now developing strategies to help me cope and achieve things.
I started my blog from my bed, and I was able to get away with sharing great images and *cough* mediocre posts, but I’ve come a long way since then. I enjoyed some initial success back then because I was a Pinterest, power user. Flash forward to 2017. I have decided that I am not going to let these medical problems define me and that I am going to get super serious and start the flip out of business. I have that support. And I am determined. Bring it!
I’ve kept my medical conditions a secret because I wasn’t sure how people would react or if any success was because of the quality of my work or because of who I am and how people viewed me.
Anyway, I have reduced mobility and rely on crutches to get around (they are floral and fabulous, though), I can’t make it to the end of my street, and we are in the first house.
When my mum became hospitalised last year, I needed a wheelchair to get to the ward to see her. I was really surprised by how much people stare. Being a complete introvert, this made me pretty uncomfortable.
So that you know I am most definitely not unhappy. I’m a pretty positive person (when my medication is in harmony) and I am very lucky that my family are so very supportive. I just thought it was about time that I shared my story with you.